Chicago Area Surveillance, Statistics, and Analysis Network for Diabetes, with Representative Ascertainment
openNCCDPHP - National Center for Chronic Disease Prev and Health Promo
PROJECT ABSTRACT
Diabetes is an increasingly common chronic disease in children and adolescents under age 18
years and in young adults age 18 to 44 years. Previous diabetes surveillance efforts have
included (among others) the “SEARCH for Diabetes in Youth Study” and the “Assessing the
Burden of Diabetes by Type in Children, Adolescents, and Young Adults” (DiCAYA) Network.
The population-based registry approach in SEARCH was considered to be relatively expensive
and labor intensive; the DiCAYA network was initiated because of the potential that EHR
databases hold to provide efficient processes for diabetes surveillance. DiCAYA advanced
diabetes surveillance and illustrated challenges when using EHR data from multiple networks
and subsites across the country. This CASSIDY component A proposal, in collaboration with the
Chicago Department of Public Health, will contribute data from the Chicago Area Patient-
Centered Outcomes Research Network (CAPriCORN). In collaboration with other data
contributors in the CASSIDY network, we will apply expert knowledge to develop and to apply
the best algorithms for identifying incident and prevalent diabetes (by type) and diabetes
complications, risk factors for complications, and medication use patterns. The CAPriCORN
network includes many healthcare systems and a large patient base in Chicagoland. During
2020, more than 3.1 million patients (of all ages) visited a CAPriCORN-affiliated healthcare
organization. This study is innovative because it will leverage multisite data from one of the
most diverse -- in its patient population and in its facility types -- clinical research networks in the
U.S. CAPriCORN includes not only the academic medical centers in Chicago but also Cook
County Health and the AllianceChicago network of Federally Qualified Health Centers. This
study will advance understanding of the differences in the burden of diabetes (by type) by
demographic traits, health insurance status, and geographic area. This project will be valuable
for both the Chicago Department of Public Health and CDC.
Up to $500K
health research